God answered our prayers yet again last night. An hour after we began praying kyle's carbon dioxide was down to an acceptable level. Please keep praying for his lungs and kidneys. they need to superanaturally mature. We need to continue praying for protection from brain bleeds, he is having to take some of the medicine that can be responsible for these. Pray for protection from infection. today they moved kyle to 55 breaths per minute from 60 - this is a good move, we want to continue moving this number down. So lungs, kidneys, brain, and no infection - there is everyone's assignment. THANKYOU! God is answering our prayers. Our prayer for each of you is that your faith is increased as you see Jehovah Rapha move.
last night was beyond tough. I have never before experience emotions like these - fear, ache, terror, those don't realy describe it I have never screamed and cried from as deep a place in my body as this. how can thought and emotion evoke such a physical response? (this is not a good thing just after surgery I might add) my husband sobbed beside me, held me, and just simply spoke the word "peace". I learned something last night... God's peace is enough. It is stronger than fear and grief. this was a powerful lesson for me - one that I will need on this journey.
on a note from mom - today was good. I was very nervous as I went to see kyle but when we walked in all the numbers were blue. (when numbers are blue they are in an acceptable range - red is our of range and that is not good). He had a good day. I got to hold him today - now outside his house (that is his incubator) but the nurse had to change the burn pad he rests on (that is b/c his skin is so immature - a baby blanket would hurt him). So I held him us while she slide the new pad in. it was amazing!
Kyle truly brings me so much joy! He seems to nestle in when I sing to him, he loves to be enclosed by his pads (like being swaddled). He is so good tempered as the nurses mess with him. I also got to change him again today, sing to him, talk to him. We had a great day together.
more soon....
3 comments:
thank you for sharing your heart with us. God is being glorified through your journey. know that we understand the pain and peace that you described and will continue to pray for you and john as we pray for kyle each day.
"The Lord is close to the brokenhearted and saves those who are crushed in spirit." Psalm 34:18
What an amazing thing to experience and learn that even through the fear of the present circumstances and the fear of the unknown, God's peace truly is enough. And His grace is sufficient. May He be honored and glorified through the life of precious Kyle and may His spirit minister to you through these incredibly difficult times.
"The steadfast love of the Lord never ceases, His mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23
Many prayers, many blessings, and much love, Adriane
Hi. A friend of mine sent me an email about you. I wanted to send you an email of encouragement. I am the blessed mom of 2 premature babies. My first - Matthew - was 3lbs 13oz. He is now 5 and other than some sensory issues and some vision problems He is a very healthy happy boy. My second - Nicky - was 3lbs even. He is now 18 months old and normal and happy in every way. I know they were not as small as Kyle but when we were in the NICU with Nicky we met a family with a little girl who was only 1lb when she was born and she was doing good and was up to over 7lbs.
I will pray for Kyle and for your family. It is a difficult time for all but it sounds like you have a fighter and all of your love is surrounding him. One day this will be a distant memory and as your little boy is running around you will think back in amazement at how hard he fought to get to this point.
God bless you all!!!!!
Julie
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