Anyway,... this is a great thing to have this line back in. It decreases the number of times they have to stick Kyle with needles, and lowers the risk of infections. He has had some great blood gases until today. BUT, with a few tweaks of the vent, Kyle was back to good before we left. He is tired, though,... you can tell. He had some pretty big cultures taken today. Lots of activity, so hopefully, he will get good rest tonight. Though things seems to be going well, we still have to be in prayer for our little buddy. Though the cultures came back negative, Kyle is still fighting infections. He is on some pretty intense antibiotics right now. They have been able to restart the FFP drip which is for the clot in his heart. They are treating the clot in his heart as if it is infected right now, and will continue to do so for at least 2 weeks, possibly 6. We are still concerned about the blood resolving off his brain well, not obstructing any spinal fluid or blood flow. Kyle still has his clot, we pray it resolves quickly. Good news is they have restarted feeds, so we pray that those increase so that we can fatten him up quickly! Though he has a wicked bad vent leak,... he is actually doing pretty well with his vent today. His oxygen needs were pretty low today, so that is great news! Please continue to pray for him. Be encouraged with us as God is sustaining Kyle and bringing health to his little body,... but please remain diligent with us in prayer. Kyle gets to switch out beds soon,... he will still be in his lexus of a bed, just in a new one! Can you believe this??? The bed Kyle lives in (his fort we call in with Jadon and Jack)... This bed is amazing ridiculous. Children's Miracle Network enabled Children's Memorial to have this bed, so if you ever doubted where the money goes they raise,... here is a worth while effort. This bed can do so much stuff.... regulate temperature, humidity, weight, etc... so so much more... that lexus bed (as our nurses call it) costs the hospital something like $34,000! YIKES! Seems that my little man has expensive tastes.
I know you loved the pics of Jadon meeting Kyle, so I am going to try and post some more of those for you if our blog will cooperate. This is actually my second try at this post,... so... we will see if I can make it work. Thanks for praying with us, for us,... for Kyle. It blesses my heart to know how many people love my little guy through intercession!
Blessings to you ---
OK ... tried to post the photos,... didn't want to work... I will try again tomorrow.