Kyle's NICU Story in Pictures

Monday, November 5, 2007

monday - end of the day JOHN

Monday – end of the day update

Well, Kyle is officially 2 weeks old! What a fighter he is! What an amazing gift of God he is. I am so overwhelmed… I feel like I say that a lot, but it is so true right now…
I feel totally overwhelmed. Exhausted, … but still overwhelmed never the less.

Tonight, his nurse, Susan told me that it was time for me to help out. I, of course, lathered up with tons of hand sanitizer. Kelly laughs at me. I think I have become obsessive compulsive about it…

I then put my hands inside his little fort (incubator) and held my hands out.
She picked Kyle up and layed him in my hands to hold while she changed his bedding.

I got to stand there and hold him, and talk to him while Susan made his bed out of soft and fuzzy blankets. Kyle just layed there, very content, looking at me while I talked to him. What a cool moment.

I kind of took it in for a minute. His whole little body fits inside my hands. God gave me a picture… a snapshot… It was as if He were telling me that He holds Kyle just like this all the time… so no worries…

“Easier said than done, God…” that is what I thought, but still found a lot of comfort and hope in that picture from the Lord.

Kyle had a good day today. I already updated you on the feedings, and the EEG report card being normal, which is Kyle moving in a good direction right now.

I pray that he continue this path. We are always told to brace ourselves…. There will be good days and bad days. I love the good days. Today was a good day, -- no, today was a GREAT day. Especially the end when I got to hold him.

Please pray for Kyle and us. They will be rescanning Kyle’s head Thursday or Friday to see the extent of the bleeds. I am praying for supernatural intervention here from the Lord. I am asking God to recede the bleeding and that Kyle would absorb this blood very quickly. I pray that God will remove this bleed totally and heal him. It would be amazing to see the doctors stand amazed at that, and to have to say it was God, being that there is nothing medically they can do for that condition.

Pray also for his respiration… that he would get healthy and strong in his lungs. He is all over the map right now, moving up and down on his oxygenation. They say this is normal, but I am praying for rapid development,… and health in this area.

Pray that his PDA will stay closed.

Pray that his feedings will continue and that they will be able to increase the amount soon! Pray for continued good digestion.

Thanks so much for praying for us. Please continue to spread the word about Kyle and his site… prayforkyle.com!

Your encouragement and prayers have been a true blessing at the end of really hard days… but on the way home, I heard a great guy on the radio singing,… the song was
“here comes better days….”

I pray that is so!

11 comments:

Anonymous said...

God is so very good. I love His hands!

Isaiah 59:1

Behold, the LORD's hand is not shortened,
That it cannot save;
Nor His ear heavy,
That it cannot hear.

Isaiah 41:10

Fear not, for I am with you;
Be not dismayed for I am your God.
I will strengthen you,
Yes, I will help you,
I will uphold you with My righteous right hand!

Still praying for lots and lots of good days! - Colleen

Unknown said...

Jesus, thank you for a GREAT day. I pray that you continue to hold little Kyle in your mighty hands! Thank you for this gift that you have given all of us in Kyle and the testimony that he has and will continue to give to us! Thank you for John and Kelly for their transparency and the faith that they are demonstrating to all of us! Let our needs and wants get lost in your will oh Lord!

Anonymous said...

Oh Happy Day!!!! God is sooo GOOD! Just want you to know that we are still praying... it's a family affair! Auburn and Carrie

Anonymous said...

John, we are praying... keep us informed. BTW, the coffee, coke and a burger invite still stand, brother.

In His Grip,
josh rhodes

Emily said...

I found your blog through a message board that I frequent. I had a 24 weeker 2 1/2 years ago, so I can relate to a lot of what you are going through. Little Kyle will be in my prayers!

mandy said...

i wanted you guys to know that we are adamantly praying for the brain bleed in kyle's head to reabsorb and that there be no residual effects from it in the years to come.
our eldest son spent some time on a ventilator and an osilator after he was born. he too had a brain bleed and we were warned that he may not speak, he may not walk. henry will be 6 this december and he walks, talks, runs, has a memory of an elephant and is able to hide God's word in his heart. i am praying that for kyle. i am praying that our great God will show Himself mightily when they scan kyle's brain this week.

Southmont Student Ministry said...

We at Lakeland are still praying for you John and Kelly and we are praying daily for Kyle. It has been a blessing to see you walk this tough time with transperancy, honest and faithfulness as you cling to God. Praise Him through whom all blessings flow for a good day today!!!!

Jennifer said...

My husband got to hold our son, Max, when they changed his bedding - who would think that something as small as that could mean so much to a daddy!

The emotional wear and tear is so hard when your child is in the NICU and so sick. You wrote about the panic feelings and I can remember those so vividly. It literally can make you physically ill. In addition to praying for Kyle's full and complete healing, I have been praying for you guys to feel calm, positive and optimistic - God can take the panic and fear away.

Please tell Kyle that he has people in South Carolina praying for him and checking on him daily!!

Take care,
Jennifer Clardy
Max's mommy

Anonymous said...

Praise God for yet another good day! Still prayin' for you and Kelly, Kyle, Jack and Jadon!

Anonymous said...

John - Praying for you "little lion" who has shown signs that he is great fighter and at such a young age has a tremendous amount of courage! You and your family will continue to be in my prayers!

God Bless!
Lori Hooper Proctor

Anonymous said...

John and Kelly, Just want you to know that we are praying for you each and everyday. We are on the website several times a day. What a testimony you are to those that know you and those that don't. Thank you for telling us specifically what to pray for. He is absolutely beautiful!!! Our Macey came early and spent some time in the NICU. Todd and I both close our eyes and can see every facet of that huge room even 7 years later. Please know that your entire family is being prayed for and we would love to help in ANY way we can. We love you guys, Todd and Ashley Crowder

Click below to go to my Personal March of Dimes Page

Our Story

This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.

Kyle is in the March of Dimes Promo!