I hate the new normal. Don’t get me wrong… I would rather live this right now than not,… but I absolutely don’t love the new normal that our life has become. Kelly and I were having a pity party for two on the way home from the hospital today. We were discussing how today, we should have been shopping and decorating for Christmas and doing all the things that we usually do. We aren’t very “traditional” people, but there are a few things that we have grown to love as a couple and family,… some of those being do the thanksgiving thing with family, then the shop till you drop (even if you don’t purchase anything) day after thanksgiving extravaganza. Now, the other part of me didn’t totally mind missing out on all of that, but,… just the normalcy of the holiday was sorely missed. We spent the day at the hospital. We met some new friends in the nurses,… Kari and Sara were great today. They sort of tagged teamed because poor Kari was on charge nurse duty today, which meant that not only was she Kyle’s nurse, but she was over all other 50 something babies nurses in level 3 NICU. WOW! So, needless to say,… she needed an extra set of hands/eyes etc… enter Sara. They both did such a great job taking care of Kyle. Great people. Kyle did well today considering… when I say that, I mean considering the vent leak that can be either 0-100% at any given moment,.. the pda valve that continues to give him fits, etc… These two things alone are enough to give a parent a heart attack due to how these things present themselves. Together, it just isn’t fun at all. Kyle’s Breathes per minute and Oxygen needs were high today. That was a little hard to take, but we have also been told that he is doing very well considering all he has to overcome, … his doctors and nurses are encouraged by what they see, knowing we still have some hurdles to overcome, but never the less,… encouraged.
That is a good word… encouraged. Poor Jack doesn’t feel well tonight, we can tell. It is difficult to see and know that your kids aren’t feeling well or coping well to change… (the new normal isn’t too much fun for them either… however, we are encouraged.
We have a new 23 week little guy that came into our pod yesterday. It was hard to look at his incubator and parents knowing that they were living in their day one… it flooded back too many memories from just a month ago… but, even still, I am so thankful for that month. I am thankful for the new normal even though it isn’t what I would choose, what I would want… but here we are… I think about that matt redman song a lot,… Oh no, you never let go through the calm and through the storm, oh no,… you never let go every high and every low oh no… you never let go, Lord… You never let go of me…
Great words. Great song. I can see a light, that is coming for the heart that holds on and there will be an end to the troubles but until that day comes… still I will praise You, … still I will praise You…
So even though I am not in love with the new normal… still I will praise Him.
God is good. Times are hard. But, God is good.
I want to say thanks to all of you who are caring for us, about us… text messages, comments on the blog, emails… these things are so encouraging to Kelly and me.
The meals, the gift cards,… these things have been such a blessing to us…. The anonymous people who sent us the card in the mail with the gift,… thank you so much. We received it today. Know from the bottom of our hearts that we are so thankful to all of you, and for all of you… our friends, our family, our community. God is using you to be our encouragement, and to help take care of needs for our family in this time…
And we are thankful for that. We are grateful for that. We have so much to be thankful for… even though this holiday isn’t exactly how we designed it,… it means more to us this year than it has in a long time. The new normal may not be fun sometimes,… but it sure is assuring of God’s care and His glory.
- John and Kelly
- This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.