This article is great. Kyle and Rachel Fox, parents of Hannah Fox (a fellow former 23 weeker) have been a life line for john and I. As soon as they heard of Kyle they were at the hospital and taking us for dinners, showing us the ropes and most importantly offering an ear and a shoulder. Hannah is an inspiration. She is beautiful and even thought she works hard, she is developing wonderfully. In addition - Dr. Parik that is mentioned was one of Kyle's neonatologists. He is amazing and has been very instrumental in me understanding Kyle's brain insults. Hermann Children's truly is an amazing place - a side note - hannah was in the same pod kyle was admitted to - 5 years ago!
When you read the statistics... Kyle is male, I did not receive steroids, many doctors and nurses felt that kyle was less than 23 and 4/7 (this was b/c of his skin and lung lack of development), and he was 1 lb 3 oz at birth and lost down to under 1 pound b/c literally he would lose fluids out of his skin.
so you can see why they gave Kyle less than 1% chance of survival. and 0% chance of a "natural" life. we are skipping "natural" and are now on our way to "supernatural"!