Time to pray for Kyle again - Kelly (new pics below!)

Kyle is sick.  I think he has a little bug.  He had some sinus type stuff on monday (not too bad) - we got his 6 month shots that day too!  Then tuesday woke up (after sleeping 15 hours straight!) and had laryngitis (you couldn't hear his cute little cry!)  He wasn't horse from crying b/c he hardly ever cries!  He just had not voice!  No fever - and he has thrown up several times yesterday and today.  He is sleeping a ton too - so I know he doesn't feel too great!  However - when he is awake - we are still getting lots of those new grins!

That is not really my concern - Kyle seems to be getting over his bug and getting better quick!  I would like you guys to pray for Kyle's brain and physical body.  I mentioned after his appointment with Kyle's physical therapist that he was looking really good!  A couple of weeks later we met with Kyle's neurologist - he said right off that Kyle had high muscle tone and hyper-reflexes.  Both symptoms that stem from Cerebral Palsy.  I did not appreciate this doctor - not because of his opinion but b/c I could not get him to explain himself to me - he just kept saying over and over that he could not predict kyle's future - strange thing was that I never asked him to - I wanted him to explain to me Kyle's brain injury.  I can cover the future stuff but as a mom I would like to have an understanding of what physically has gone on in Kyle's body.  Anyway - I did not put too much stock in what he said but I do realize that CP is one of the things that Kyle is at risk for.  Then we visited our Pediatrician for Kyle's 6 month check up...

an aside - for those of you wondering if I took all three to this appt!? - yes I did!  better than last time but not without incident!  story for tomorrow!

back to kyle....

I mentioned the findings to our Pedi and he checked Kyle over and said that he could feel - some tightness in his tone.  and he said we would write down mild hyper reflexes.  the reflex issue comes from the fact that he still quivers his chin alot - from what I understand that is a normal newborn reflex - but Kyle still does it at 9 weeks old (corrected).  and he also quivers ini his legs.  Seems to happen when he is taking in info - sensory or listening to a new voice in the room or changing positions, etc.

Then today we had met with our OT.  She said that she also felt some high tone (stiffness) in his muscles.  Not what I wanted to hear.  but none the less.  Kyle is now on OT therapy once per week and then I do his therapy with him 4 times a day.  We will add infant massage also 4 times a day before therapy (or we call it "play time")!  This will be challenging to work in but I am determined to give Kyle every opportunity to meet his milestones as close to his corrected age as he can.  I used to think - who cares if he crawl late or walks late - any micro preemie mom can fill you in - the docs had to do it for me - it is really important for these little guys to achieve these motor skills b/c our motor skills are what develop our muscles and thinking and processing of sensory information.  Kyle's brain learns when he puts his toes in his mouth - it also builds muscles that will help him to be able to crawl and walk and run one day.  so stretching his legs so that his toes reach his mouth and teaching him to be able to cross center - Left hand to right leg - are SO important!  I am learning so much lately!  

and still I am learning about God - he is jehovah rapha - so I am asking you guys once again to hit your knees and join me.  I know that God glorifies himself, i know that God loves us, I know that God is omniscient and sees the big picture, I know that God has created Kyle, I know that Kyle's brain has suffered injury and I know God can restore and heal him.  I am begging that for Kyle.  I am asking that God would restore Kyle's muscle tone heal and restore his brain - making everything perfect for his little bones to grow strong and muscles to coordinate the most intricate of movements!

Thank you for praying.