Kyle's NICU Story in Pictures

Monday, November 9, 2009

EEG Results

I was having a perfectly normal day. Kyle had picture day at school today. I got a call about Kyle's EEG results and they were not what I expected at all. So in my head I start scrambling for a verse that makes it make sense. A scripture that makes it okay or that reminds me that this is not about me or about Kyle. ... ... can't think of one.

I'll keep trying.

obviously I didn't the results we wanted. didn't get the results that I was expecting.

on a positive note - a good reminder to stop slacking on therapy. It is so easy to listen to everyone comment on how "normal" he seems and how their child did that same thing and they are "normal". and I fight all of those thoughts but somehow they do creep in and make me feel okay if I miss one infant massage or one 30 min session or one time wearing ankle weights. Kyle is doing so much more then anyone ever thought he would. I believe he is being healed and is so amazing. He deserves to be fought for!

I should know more details from the doctor in a few days and I'll update more then.

6 comments:

Natalie said...

Praying for you guys constantly, Kelly! Please keep us posted.

Hugs,
Natalie

Sarah Soon-to-be Langhoff said...

Praying for peace and understanding! -Sarah

Kathy L said...

in my thoughts and prayers!! love ya!

Bonky's Mom said...

I'll be praying.

amyoutlaw said...

I'll be praying for peace and understanding and a verse that'll come to you and make things make sense.

One verse that's my go to when I feel anxious or worried...

Phil 4:4-9.

Hugs!!!!
Amy

Carol Jones said...

The day you posted this, I journaled a prayer for you. It said, "God, whatever today brings, be near to Kelly." Funny how God works.

Here is a verse I cling to often, for different reasons than yours obviously, but they bring me great comfort. It is Proverbs 3:5-11 The Messasge.
"Trust God from the bottom of your heart; don't try to figure out everything on your own. Listen for God's voice in everything you do, everywhere you go; he's the one who will keep you on track.
Don't assume that you know it all.
Run to God! Run from evil! Your body will glow with health, your very bones will vibrate with life!"

Love you and think of you often.

Click below to go to my Personal March of Dimes Page

Our Story

This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.

Kyle is in the March of Dimes Promo!