So, we just got out of rounds...
this is where all the doctors come in and stand
around your kid and talk a bunch of stuff that you
grab about 10% of (and somewhat understand!)
Thanks for thier patience as we ask questions,
and they are always so great to stand and
say, "any more questions?" until we have exhausted
all that we have (at that one moment!)
These doctors and nurses, and therapists are truly
top notch. Makes me wonder why I didn't apply
myself more in school,... :)
So, here is the report we got today:
blood count a little low, so we needed a new
transfusion,... this got me a little nervous,
because this is the first thing that led to the
brain bleed scare last week.
Doctors don't think that is what is going on here,
only because they are drawing more blood off of Kyle
here and there, and he can't quite catch up to replinishing
himself because he is too small.
I know the pictures don't do it justice...
he looks like a good sized kiddo, but truly,...
lay a 20 ounce coke bottle (diet ofcourse, because
that is the best softdrink known to humankind)
anyway,... (a.d.d. there...)
lay that coke bottle down and that is a good
size indicator of how small/big Kyle is!
Other than that, he is not growing anything in his
cultures, which is GOOD because that says that
a. infections are'nt present and
b. medications are working the way they should
They did mention a possible repeat of an echo on his pda
to see if it is closed or not,...
no real concern here, because clinically, he has had
a great 2 and a half days and nights.
He is also putting a little meat back on his bones!
He is back up to birthweight, which we found out to be
1 pound, 5 ounces. (Isn't that crazy small?)
His feedings are going really well right now at a
whopping 1.5 cc's per feed, so I think he is digging that.
I mean, it ain't Kobe Japanese Steakhouse or anything,
but,... he digs it.
The EEG report came back today as 'Normal' which was
a big sigh of relief for mom and dad because he really
was presenting as someone with a head trauma the day he
started the brain bleed... this was very scary for us.
However, sometimes these preemies can jerk randomly, and
posture differnt ways that we view as normal becuase thier
neurological and nervous system isn't fully developed
yet, so they don't make very smooth movements.
We are still praying that supernaturally, God will
allow Kyle's bleed to decrease, reabsorb,... go away,
and cause no scarring or insult to his brain.
I am praying that all Kyle's brain fluids have been
unobstructed, even with the bleed so that there is
no long term affect. I have been praying over
that little guy and for his brain everytime I think of
him and see him. I got to hold him yesterday!
That was awesome. Pray for Kyle's brain to be even
more resilliant than textbooks and doctors say,...
I am praying for total restoration.
Pray for Kyle's respiration as well! He is doing
pretty good with it today. We still have a little fluid
in the lungs that we would like to get off, but all in all,
he is going well today. They have weaned him down a couple
of times, which is good.
They are also pretty much taking him off of humidity
because his skin is looking better/healthier/stronger!
Keep praying for that, and know that all of this
is worthy of praise!
God has given Kyle two amazing, and supernatural weeks
of life, and our prayer is that God continues to grow
him up to be used in powerful ways for HIS kingdom.
What a cool thing to be able to know that from the moment
you were born, God used you to draw people to Himself,
all over the world, in such a powerful way?!
I pray Kyle is used by God for many many years to come,
as His mouthpiece and His heart and His hands for many
many people to see and believe in the power of the
resurrected Christ! I pray that when Kyle speaks,
the very Holy Spirit of God speaks directly through him.
I pray that the air Kyle breathes is the very breath of
God. I want this and pray this for all our boys.
Jadon, Jack and Kyle... Father, use them all as your
instruments to give You glory and to further Your kingdom.
doesn't mean it is easy,... obviously....
but, it does promise amazing things.
Kyle's NICU Story in Pictures
14 comments:
Sounds like you guys have had a good morning today. That is so awesome. Congrats on the holding it is so nice to finally do that. When we did Kangaroo care they literally had to peel Kirby off of me I wanted every minute with her. Have a great rest of the day as well. I keep forgetting to tell you this story. The other day (cant remember which one now...too old) when I found out that Kyle had been born, I called the NICU just by chance to see if I could talk to you or to Kelly. I was prepared to lie (sorry GOd) and tell them I was family if I had to just so I could talk to you however, through the course of being transfered from one receptionist to the next and then finally to kyle's bedside, they thought I was your sister !!! They kept telling me, "you need to call your mom, your bother and his wife are already gone for the day" How funny is that. I guess I will change my name to Stacy. Then I kept trying to tell them I was not your sister and they still kept calling me that. Oh well after all the growing up we did together I might as well be your sis. You always felt like my little bro, you bugged me like one anyway. Maybe I will try to call the hospital again and see what happens. Have a laugh on me today, you need it ....
Brandie
Every little hurdle he overcomes is a testimony to the healing power and strength of God. Praise God!
Last night I was up feeding my little one and he was having a hard time going back to sleep. As I held him, we prayed together for your family. You guys are constantly in my thoughts and I have shared your story with so many people.
Your sister in Christ,
~Tabaitha
PRAISE GOD FOR THE GOOD REPORTS!! THIS IS SUCH AWESOME NEWS.... MAKES ME CRY! STILL PRAYIN' FOR YOU
I am inundated with inquiries by phone, email, and with people appraoching me out in public asking about Kyle's status. Kyle as well as you guys are on the hearts of sooooo many! Be encouraged! Our church as a whole prayed for you yesterday and will continue to do so.
John & Kelly,
I was just sent an email about Kyle and your website for him. I want you both to know that I and my family will be praying for healing for Kyle, for your other sons (it must be hard for them to understand what's going on) and for strength and hope for the two of you.
God is so awesome. What you've written so far is a powerful testimony.
I went to school with your (John's) sister Stacy and work at SHSU like your mom Sharon. Someone at work had told me Sharon's grandbaby was in the hospital but until I got the email today, I didn't know the whole story.
My thoughts and prayers will be with you.
Kristie (Bradley) Kelarek
Dear Kelly & John,
I pray each day for Kyle as well as the whole family and friends network, as you all need each other. I work in the Medical Center and would be happy to come sit with the family or bring lunch or just another smiling & praying friend to give you a hug. Please let me know if you would like any or all the above. I will ask those in my office area to put little Kyle on their prayer list.
Many, many hugs and prayers!!!
Michele Weaver Kooken
mkooken@tmhs.org
Kelly:
I just got your posts on Truman's blog and sent you a couple of e-mails. I can say that I was exactly where you are just a year ago with a 1 lb, 4 ounces, 11.5 inch baby boy. He, too, developed brain bleeds that worsened in his first few weeks. Today, at 15 months, he is a beautiful, happy and healthy (albeit tiny) little boy. He continues to face challenges as a result of his brain bleeds and other prematurity effects, but nothing like the horrible visions that we imagined when we got the word that he had suffered grade III and grade IV bleeds.
My heart goes out to you because I truly know how horrible this road is for your family. And there will probably be even more horrible days ahead in your NICU journey, but I can tell you that even though it's been less than a year since we made that triumphant journey out of the hospital doors with our 23-weeker in tow, on most days, NICU seems like a prior lifetime.
I will be praying for you and am happy to answer any questions or just be there to commiserate about how unfair this is to your child and your family.
Kara
(Another Texas mom to a 23-weeker)
www.tinytruman.blogspot.com
By the way, a 20-ounce coke bottle is exactly the same analogy I have always used to describe Truman.
Since coming across y'alls website Friday, I've been praying that God will supernaturally heal little Kyle. Today I was sharing with my second grade students about his journey, and some of them made him get well cards. Is there an address (at the hospital maybe?) where I could send them? Let me know-- CathyLovesJesus@hotmail.com. Your family will continue to be in my prayers-- be strong, our God is a MIGHTY GOD and He watches out for all His children...
Cathy
Such great news! Prayers will continually be lifted up for Kyle and your family. More great things are yet to come.
A member of your church passed me your site. I live in Dallas and had twins at 25 wks in January. I know oh too well what you are contending with at the moment - though I know my boys got an extra 2 wks on your Kyle.... and I know that 2 wks in the womb is an eternity! You certainly have a fighter on your hands. Good for you! I'll be praying for y'all every day. If you don't have a copy of a NICU reference guide I would suggest Preemies: The Essential Guide for Parents of Premature Babies. Also, go to your NICU support mtgs if at all possible. If you have any questions or need to dump to a sympathetic ear, please feel free to write me at kellyaespinoza@yahoo.com. God bless you on your journey! Remember, it's a roller coaster ride! You seem to be doing that... remembering that it's HIS plan, not ours...Keep positive!
I am so blessed to see God working in such amazing ways! How He has already used Kyle and used the faith you guys have to draw others to Him! This is such a beautiful picture and I can not wait to see the finished portrait! We have been and will continue to pray for you guys. Oh by the way- sorry about dinner tonight... I have serious memory issues lately. :) I hope all is well with the family. We are trusting God in the midst of all of this. I am so glad He is in control and not us. What an awesome God we serve!!!
As I go through my day, I'm asked so very often about Kyle and am told by so many that they and their faamily and friends are praying for him and the Sherrill family....just wanted you to know we are all still praying. Happy end of the second week....our love
I am so blessed to hear the good news. I will continue to pray that Kyle does well and that my Lord holds you close in perfect peace.
When we are weak, He truly is strong. I pray that he continues to show himself strong in you, your family, and your precious little boys... especially Kyle.
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