THURSDAY, NOVEMBER 08, 2007 11:59 PM, CST
Oh Thursday… must see TV night (except when writers are on strike)
(somehow I manage to keep up with the news a little)
Our report card for the day:
KYLE POOPED!
(everyone should cheer here, somewhat feeling a little jr. high about it, but really,… this is a good thing.)
I am totally sure that one day, somewhere at the age of embarrass-ability, (get it, not accountability,… but,.. yeah, anyway,…)
I am sure one day he will be mortified that we posted about his first poopie diaper online for the masses to read about, but hey,… we are proud parents.
Somewhere late in the day, they (team) began to look at x rays of Kyle’s abdomen to see if they thought there may be something wrong with his intestinal track, etc…
They gave him a small dose of medicine to see if he would go #2 we call it in kiddieland,
And well,… boy, did he answer…
I have never seen Kelly so excited to change a diaper in my life.
So, we all breathed a sigh of relief on that one.
Other updates?
PDA- valve still open a little (confirmed through the echo cardiogram)
Cultures (blood) came back negative, which is great, because this signals to the team that there is no infection in Kyle right now! This is great news! This means we may be able to come off all antibiotics soon!
CLOT (the new development) ECHO #3 showed this to be minimally SMALLER!
THIS IS GREAT NEWS! They continue to give Kyle the fresh frozen plasma drip throughout the weekend, we believe.
They had also scanned Kyle’s abdomen to see if there were clots there,… CLEAR!
That is great news!
His CO2 is lower, but not low enough… keep praying for this to get lower!
His pH is up, which is better,…
We are still praying for his stats to level out, and for Kyle’s respiration to get better.
IVH (Head bleeds)… this is the big source of nerves right now.
We have a scan tomorrow to see if the bleeds got worse, are the same,
or got better. We are praying for better. We are praying for the blood to have been reabsorbed into Kyle’s body. We are praying for no scarring and no damage.
We ask God for total protection of Kyle’s brain and for healing!
All in all, it was a better day. We thank God for that. We needed that after such a scary day yesterday, and a potentially scary day tomorrow.
Keep the clot in your prayers. Pray for it to go away, and not be infectious.
The worry is that is could be an infection waiting to brew, so, we are praying that would not be the case, and that clot would dissolve.
Pray for tomorrow and the brain scan. Please pray God’s favor on this, and that this would be one area where we can see the power of God displayed for His glory.
Pray for Kelly and my nerves.
Pray for all to go well on our financial end. We have met with some people to see what insurance is going to do, and what else may be available. It looks like there could be some great help for us because of Kyle’s low birth weight and gestational age at birth.
Nothing is guaranteed until we get the word, … so pray that all that goes well!
Thank you again for praying and allowing me the freedom to vent sometime.
Thank you for praying for Kelly. Please continue to pray for her. She is having bad dreams of the day Kyle was born, and then some,… so pray that God protects her mind and gives her rest!
Pray for me. It seems like there are days where I am filled with peace, and then there are days where I can barely keep it together. It is so wierd... I actually thought to myself, 'this is what hormones feel like in women.'
hahaha.... ok, just kidding. but really,... it is strange to be
minding my own business, seemingly perfectly fine,... and all the sudden out of nowhere -- get teary,...
weepy almost,... (like a woman at a good shoe sale.)
Just kidding again... sorry.
Thank you all so much! We really do appreciate all your calls, messages, voicemails, etc… they are very encouraging to us. It is part of how we refill every night and prepare for the next day. You bless us greatly.
Kyle's NICU Story in Pictures
Click below to go to my Personal March of Dimes Page
11 comments:
HOORAY for a good day!! the prayers won't stop. and neither will the Power that answers them :)
I'm praying for good news tomorrow!
smiling....and still praying...Love, Linda
John and Kelly, Have been praying for you guys and Kyle. I was so glad to read some good newa this morning. I am asking the Father for great things today on Kyle's head ultrasound. Laura Bowers
I kept checking this site all day waiting for an update of little Kyle. What great news on all the little progressions Kyle is making. Prayers will continue for your entire family.
On a lighter note, your forgiven on the hormone comment!!
Hope today brings you guys more great news. Will say many prayers today!!
Lori Proctor
I'll be praying throughout the day today.
We always knew you were a hormonal woman.... that explains so very much. the days where all you wanted to listen to was alanis, the hotel snobbiness, the occasional irritation. :)
Sorry... but you left yourself SO wide open for that one.
Love you guys - thrilled that it was a great day, thrilled that your little man pooped, and praying so very hard for tomorrow and for continued healing.
"the Lord's unfailing love surrounds the man who trusts in Him." Ps.32:10b....that's the prayer for you guys today - that the Lord's unfailing love cover you up so you know His peace and do not have fear. May the "good days" begin to outnumber the "bad days" soon and may the "good days" be about overcoming the "bad days"!!
Gotta get to that shoe sale...
Loving you with His love - Debbie Keil
I have to tell you that it is good to hear that you still have your crazy sense of humor...(the hormone thing)...I almost fell on the floor laughing at you, but being "A WOMAN", I did have tear filled eyes from reading about baby Kyle...
You know I told you that we had a premie born in our family 5 months ago, well, she told me to contact you and tell you about some financial help you are entitled to. It may be what you posted, but it may be something else...
I am continuing to pray for you all.
I was going to come by and see you at the hospital yesterday, as I was in the med center with my mom for her laser eye surgery, but she felt too wobbly afterwards, so I had to pass...
If you want that information, give me a call.
Love to all,
LeAnn Smith
281-748-1439 ANYTIME
No, what Kyle will probably say is, "It was just a poop, Dad!"
That takes me back to the story about your oldest son and youth camp stories out on the golf carts.
John,
I sent of bunch of financial info to my mom today and she forwarded it to your mom. I hope she gets that info to you. I really hope you can and do use it. There are so many really good organizations that help in times like these. Also be sure to talk to the social worker assigned to Kyle. She/He can be a huge source of information and help. There should be at least two if not more assigned to the NICU and any one of them can help you or get you in touch with who can. Also, talk to the patient advocate at the hospital as well. They can also give you lots of info and tell you about opportunities that may be helpful. You can also request a case manager for Kyle and that person can help you with paper work and the like. Sorry to be so long winded...it is just that it my job on a daily basis so I live, eat and sleep this kind of thing !! Like I said your mom has the list of other things that would be a great help to you guys. Let me know if there is anything else I can do. Just remember this is the marathon part. We continue to pray for Kyle hourly. I hope to get to Houston to meet him and see you guys. Kirby our oldest is a HCH graduate wants to come too. She goes to visit everytime we are there for follow ups with her docs. She said " I would be glad to answer any of their questions about being a premie" She is twelve going on twenty-five !!! She did say to tell you that you are right about the heel thing from a past post. Anyway, just know we are here to help anyway we can.
love you lots,
Brandie
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