Kyle's NICU Story in Pictures

Tuesday, December 25, 2007

Christmas day - John

What a big day.
Jadon is finally asleep. This is the kid that is usually OUT by like 8 pm,... no later.
It is now 12:46 am. WOW.
Jack has been out since like 8:30.
Santa Claus visited the boys on friday. He stopped by to check out some
things on Jadon's list. He brought the boys over some matching reindeers,... and
even a small small one for Kyle too! What a good Santa! Thanks to Mr. Lawson
for helping us contact him! He brought just what the boys wanted today.
They have had such a big day with play and cousins and family and fun.

We got to see Kyle for a little bit today. He is doing really well today.
They have weaned him to a rate of 6 on CPAP. This is really great!
He hasn't had any real episodes (bradys or desats) for some time,
unless you go into his little fort and mess with him to the point of frustration...
Then he desats a little. His digestion is still good. He loves his pacifier.
He goes crazy on that paci. That is too cute.

Tonight, he is sitting right at 96 on his saturation, which is great.
He is at 23% oxygen at a CPAP rate of 6. This is great!
We pray he continues his progress.

Tonight, I am feeling a little bittersweet.
Christmas always does it to me. This year, in particular has been a little more
than most. I think of family that has passed on...I think of blessings.
I watch my boys grow more each year. I think of friends. I hang with the
families on both sides and sit back to appreciate small things about them
(even in our dysfunction) all families has it to some degree.. haha...
thankful is my word today. I am thankful for Kyle... his progess,... his nurses,...
the hosptial.. Kelly's doctor (Ritter) and Cathy (the NNP at the woodlands.)
All the nurse practitioners.. I can't talk enough about these people.
I am thankful and hopeful.

I am also grieving tonight thinking about friends who have lost
little ones during our time at the NICU. I have prayed for them
on and off all day. Please, take time this season to pray for these families...
Myran and Christina, Phil and Jeanna,... also, pray for Coy and Chris and Ann Marie.
Coy is working hard.

Jack today was all about saying Ho Ho Ho yada yada mas...
can't really type what exactly or how exactly he would say it in his best
nearly 2 year old voice,...
BUT, that is what I want to leave you with. Merry Christmas.
That this would be a season of Christ... that your soul feels it's worth today
knowing that God came in flesh to initiate real relationship with us... to be our
salvation... to be our friend. That is something to be joyful about.
Beyond the blessings of His hand... the blessing of His heart for you and for me
as we share in His purpose -- to give Him glory.
I thank God that even though it hurts sometimes, Kyle gives God glory with every breath.
Steven Curtis Has a new song... I love the chorus. The verses aren't very applicable, but the
chorus hits home...

it says... " and you-- You are changing the world, one little heartbeat at a time...making
history with every touch and every smile...oh you, you may not see it now but I believe that
time will tell that you-- you are changing the world,... one little heartbeat at a time."

I believe that God has used and is using Matthew and Marshall and Coy and Kyle and so
many other little ones in this way. He is using them to change our worlds,... our families,
our perspectives... our views... our faith...

one little heartbeat at a time.

Merry Christmas. Gloria. Emmanuel.
Blessings to you and yours.

John and Kelly


Jenny said...

Our family is so blessed to have met you guys. Thank you for being a source of inspiration, information, hope, strength, and encouragment to all of us...especially Chris and Ann Marie. I love the chorus of that is absolutley perfect. You're right...these miracle babies are changing all of heartbeat at a time. It's amazing to see the transformation in our family in just these last 3 weeks. God is using Coy, Kyle, your family, and other families we've met to grow our faith and strengthen our relationships. That is a miracle in itself.

We are in constant prayer for Kyle and all of your family. I can see the day when Coy is not only playing with his cousin Ryder, but all of his NICU friends. What a wonderful day that will be!!

Merry Christmas,

Jenny Kolkhorst Sanchez (Coy's aunt)

Anonymous said...

Thank you John for sharing your family with us. I am so thankful that Kyle is doing well. I believe that God has a great purpose for Kyle.

Still praying, still believing and still EXPECTING (continued)healing.

Candy Humber

Anonymous said...

There is a song Steven Curtis Chapman sings:

So come to Bethlehem again and see
The one who's come to rescue us,
Our Savior and King
Bring your past, the joy, the sorrow, all your hope to find tomorrow
And hear the words again, Fear Not and know that God is near
And the God who spoke is speaking still
And the God who came still comes
And the miracle that happened still happens in our heart
that we believe
And we recieve the miracle of Christmas.

Merry First Christmas Kyle our reminder in the miracle of Christmas.

Paula Seale

Jennifer said...

Wow - that little Kyle is doing GREAT!! I'm so impressed with how well he is doing on CPAP. My Max had to go back on the vent twice after trying CPAP so I think Kyle is doing just awesome! I know having a child in the NICU during Christmas is extremely rough, but it sure makes the ones after that A LOT more meaningful - trust me! :)

Hang in won't be long before that sweet baby is ready to make his way home in early 2008!

Take care,
Jennifer Clardy

Click below to go to my Personal March of Dimes Page

Our Story

This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.

Kyle is in the March of Dimes Promo!