Today was another good day for Kyle. They have weaned him down to 20 breaths per minute and his oxygen requirements are down right now too. What this means is that they want to extubate him! THIS IS GREAT! But please pray - this is much more work on Kyle's part than what he is having to do now... it makes me nervous to even type this! but the doctors and nurses say now is the time to try! So what this means is that tomorrow morning when we go to the hospital, they are going to take out his ventilator tube, and try him on what is called C-pap. This is a HUGE step towards getting Kyle to a place of total feed and grow, which would move us to level 2 in the NICU,... one step closer to coming home.
There are still things we want to avoid! We had a small scare tonight, when Misty (his primary night nurse and all around cool chic with a hankering for expensive hand bags) got a little concerned with the bloating of his stomach. After 3 silent panic attacks from us, prayer, some food residual, a stomach x-ray, a visit from the favorite Dr. Lopez, and a visit from the nighttime fellow, all was determined to be fine.
Misty was able to get some air off his stomach, and well, Kyle decided to have 3 big messy diapers, so all was back to normal.
he got to eat again, and ate all 21 cc's! He was hungry after all that, I guess.
So, we pray for continued protection against NEC. This is such a terrible disease. We pray God's protection over Kyle's digestive system. We also pray for continued resolve of Kyle's brain bleeds, with protection as it recedes. Kyle has been on antibiotics for a long time. We have about 3 weeks left on this round. This is good and bad. Good because it provides layers of protection. Bad, because it even strips out the good bacteria which can open Kyle up to fungal infections, which can be serious.
Pray protection from any fungal infection. He has already struggled with a small yeast infection and an eye issue (watery and runny) This is nothing real serious, but causes us to raise an eyebrow as parents.
SO... pray for tomorrow (or today if you are reading this on monday)... The tube comes out! Pray Kyle tolerates this well and can move forward! Pray for protection over Kyle's brain and stomach! Pray for good health, that Kyle would stay free from any infections. Keep thanking God for the great doctors and nurses we have! Pray for Brandi and Steven as they prepare for the adoption of their baby! (Brandi is our primary nurse!) Pray for Coy, our little buddy in Giraffe pod B! Pray for our dear friend Caroline and her family as they have lost grandpa tonight to cancer. We have been praying for him for so long. Please pray comfort and peace to Caroline, James and the whole family, especially grandma.
Thanks for praying and interceding on Kyle's behalf! We will update early tomorrow and let you know how he is doing!
Kyle's NICU Story in Pictures
10 comments:
PRAISE THE LORD!! What a milestone we have reached! He is another week old and the ventilator tube will be coming out today. Wow, don't we serve an awesome God. I know it's been a terribly L-O-N-G journey for you both..... and all of those who are standing beside you praying. I will pray and ask God for a special blessing on Kyle this morning and the nurses and doctors caring for him so that all will go well in removing the tube!
Still praying, still believing and still EXPECTING healing!
Candy Humber
What an exciting time! 2 months, and big milestones. Thanks for always sharing what God is doing--the hopes, the fears, the good, the bad, and the ugly. We are all learning so much from your journey and are so excited with you today! May the Lord bless you and keep you and may His face shine upon you and be gracious and give you peace--
Janice
Glory be to God! Tremendous accomplishment getting to this point. Getting off the tube is such a HUGE thing. This is another roller coaster ride - sometimes it takes more than 1 attempt - but no matter how many attempts it takes, he'll get there. I have no doubt they wouldn't do this if they didn't think he was ready! CONGRATULATIONS!
What great news! I was praying as I read this entry and will continue to do so all day long and into tomorrow.
Praise God for what He's doing, has done, and will do in the future! I'm so glad He has blessed all of you with such great nurses and doctors for Kyle and will continue to pray for wisdom as they continue to care for Kyle and the rest of the babies there.
God is certainly up to great things and I'm EXPECTING even greater things ahead!
Thanks for the news... PRAISE GOD for more good news. Preaching through some of Luke (the songs that people sang as God unfolded his plan), it is amazing the emphasis on God's faithfulness- his mercy and grace. I praise God that he is with you and little Kyle and pray that all those around you recognize that (I don't know how they couldn't).
definitely will be praying tomorrow...
Merry Christmas.
Praise God! We will be praying. I know you guys must be weary... it seems to be one concern after another. Please know that there is an ARMY standing behind you, interceding for you, loving you, and believing God for Kyle's total healing. We can't wait to see the boy and then man he's going to become.
Praying also for Caroline and James and their family.
Have a wonderful Christmas, you guys. Know that we will be thinking of you and praying for you even if we can't check the blog for a few days.
We pray for many miracles this Christmas! Love you all
Jen, Justin and Gracie
Still praying for you guys and for little Kyle. May God give him the strength he needs to make this big move and to continue as this amazing miracle!
Wonderful news! Just getting to the point of trying the CPAP is a major step!
Still praying,
Kelly
Mom to a 26 weeker
How WONDERFUL!! I read they're trying for CPAP and I got so excited, Bennett was 2.5 months before he came off the vent and managed CPAP and the first time I heard his tiny cry I burst into tears - what a joyous sound. HOORAY, KYLE!! We'll be praying he handles the transition well and continues to grow strong. I am so happy for all of you.
Heidi
mom to Bennett, 23 weeker now almost 3
We love you so much and appreciate your openness and honesty. It's hard to be transparent sometimes, but you are being such an encouragement to so many people and God is using you to strengthen and challenge others in their relationship with Him.
I am looking forward to seeing Kyle again and see how big he is getting....cruisin his way on up to 3 lbs soon. Amazing!
Much love to you and the fam.
With Thankfulness, Adriane
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