Today was another good day for Kyle. They have weaned him down to 20 breaths per minute and his oxygen requirements are down right now too. What this means is that they want to extubate him! THIS IS GREAT! But please pray - this is much more work on Kyle's part than what he is having to do now... it makes me nervous to even type this! but the doctors and nurses say now is the time to try! So what this means is that tomorrow morning when we go to the hospital, they are going to take out his ventilator tube, and try him on what is called C-pap. This is a HUGE step towards getting Kyle to a place of total feed and grow, which would move us to level 2 in the NICU,... one step closer to coming home.
There are still things we want to avoid! We had a small scare tonight, when Misty (his primary night nurse and all around cool chic with a hankering for expensive hand bags) got a little concerned with the bloating of his stomach. After 3 silent panic attacks from us, prayer, some food residual, a stomach x-ray, a visit from the favorite Dr. Lopez, and a visit from the nighttime fellow, all was determined to be fine.
Misty was able to get some air off his stomach, and well, Kyle decided to have 3 big messy diapers, so all was back to normal.
he got to eat again, and ate all 21 cc's! He was hungry after all that, I guess.
So, we pray for continued protection against NEC. This is such a terrible disease. We pray God's protection over Kyle's digestive system. We also pray for continued resolve of Kyle's brain bleeds, with protection as it recedes. Kyle has been on antibiotics for a long time. We have about 3 weeks left on this round. This is good and bad. Good because it provides layers of protection. Bad, because it even strips out the good bacteria which can open Kyle up to fungal infections, which can be serious.
Pray protection from any fungal infection. He has already struggled with a small yeast infection and an eye issue (watery and runny) This is nothing real serious, but causes us to raise an eyebrow as parents.
SO... pray for tomorrow (or today if you are reading this on monday)... The tube comes out! Pray Kyle tolerates this well and can move forward! Pray for protection over Kyle's brain and stomach! Pray for good health, that Kyle would stay free from any infections. Keep thanking God for the great doctors and nurses we have! Pray for Brandi and Steven as they prepare for the adoption of their baby! (Brandi is our primary nurse!) Pray for Coy, our little buddy in Giraffe pod B! Pray for our dear friend Caroline and her family as they have lost grandpa tonight to cancer. We have been praying for him for so long. Please pray comfort and peace to Caroline, James and the whole family, especially grandma.
Thanks for praying and interceding on Kyle's behalf! We will update early tomorrow and let you know how he is doing!
- John and Kelly
- This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.