Monday, December 17, 2007
CPAP here we are! - Kelly
Thought you might want some proof - Well, it is still technically today (11:54 pm) and I wanted to post an update for Kyle today. BIG NEWS! Kyle was extubated this afternoon. It went well - he got moved to the CPAP machine with no major problems! His nurse today was great and he had a respiratory therapist there that got his tube out and CPAP on. This means that Kyle is doing all the breathing on his own. The CPAP keeps a constant pressure so that his air sacks in his lungs stay open - this is how/where he exchanges gases (carbon dioxide and oxygen). It also gives him some extra oxygen. So all the work is his and he has to be able to coordinate moving and breathing, sucking and breathing, sleeping and breathing.. and he has to remember to breath. So some details on today....
We got to see Kyle with nothing on his face! We got HEAR his first set of hiccups. and then just before we left for the day - we heard him cry for the first time! I have no words for the joy that comes after that kind of anticipation. Kyle did good on his eating today - even with being on CPAP. He also, when it is time to eat, starts to suck on his hands or if his lips rub up against his blanket we will try to nurse the blanket. Today he was trying to suck his fingers so Amanda (his night nurse tonight - she is amazing!) cut a pacifier down to fit around his CPAP and I did not have that in there for 1 second before he grabbed on with both hands and was just going to town on this pacifier! This seems great to John and me b/c most micro preemies will struggle with oral aversions - well you might not think this is a big deal but to a micro preemie it is a huge deal - they really need to be able to derive nutrition from the food they eat - so if b/c of the vent tube being in so long they have an aversion to anything in their mouth - that can be dangerous. But Kyle loves his paci! and so of course like a good mom I have decided to help Kyle form bad habits that will make his nurses crazy. I like to stand there and hold Kyle's paci in while he eats. associating a full tummy with sucking - that can help the oral aversions thing too!
Kyle had a rough blood gas after the move to CPAP - but they made a few adjustments to how he was laying and did it again in 3 hours and it was better! Please keep praying for him - I hesitate sometime to share all my thoughts if they are negative but I am trying not to filter too much for the sake of others.
today Kyle had a brady episode - don't ask me to tell you the real name b/c I couldn't . But I know it means you heart slows way down b/c you have forgotten to breath. at least that is what it means in our NICU world. so kyle had one of these today and I was sitting right there. I feel like in that room they are all used to that happening somewhat and our nurse was great - I was looking around in a bit of a panic and she was already at Kyle's side trying to make him mad so he would wake up and remember to breathe. This may not seem like a big deal now that you have been praying for Kyle for 8 weeks or b/c we are getting used to this minute by minute fear of death and hope for life - but today it felt like big deal and it is. imagine if you are sitting there praying over your child as he sleeps and all of the sudden he stops breathing, his heart rate drops from 160 down to 39. Then his skin turns a greyish color and the nurse rushes over to help. It felt like it took minutes for her to get him to come back up (get his heart rate and breathing regulated.) but I'm sure it wasn't. Kyle did not have any more of these episodes while I was there tonight. He seemed to be working hard at breathing but looked at rest when I left him.
Please ask the Lord to grow Kyle's lungs at a supernatural rate. Please ask God to continue protecting Kyle's breathing and heart rate on the CPAP - that Kyles sacks in his lungs will stay supported until he has enough "umph!" to do it himself! and please continue asking for protection over kyle from a fungal infection (he has 11 days left of the antibiotics for the clot in his right atrium.)
Please pray for a little girl in our pod that is very, very sick tonight. Please pray for her mom and dad - they had a horrific day today. Ask God to show them hope in Him.
Today was hard. Tomorrow is new.
- John and Kelly
- This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.