I woke up this morning expecting today to be like the last. then I got a call from Kyle's NP. They think may have an infection. Last night before we left the hospital I noticed you could see that Kyle was a bit loopy. You could see his intestines bulging a bit under his skin. The nurse said they would watch it, b/c his tummy was still soft, hardly any residual, and he had good bowel sounds. later that night he was requiring MUCH more oxygen and then by the a.m. they had ordered a KUB and Kyle indeed had distended bowels. So they stopped his feed and looked for an infection. They found some new white blood cells and another test that insinuated that his liver was making blood cells (to fight an infection). Hey have sent off a culture to see if it grows. in the meantime they have started another antibiotic to cover the bases that were not being covered by the 42 day round of antibiotics. OH... and today was day 41 of that 42 day round. Kyle was almost antibiotic free and IV free. but we will have to keep those around a while longer now.
Please keep praying for Kyle. His whole pod is having a hard time right now. Lots of sickness, lots of surgery, lots of people (surgeons, doctors, NPs, nurses, respiratory) there all the time, lots of lights, lots of big words, scary talk and phone calls. Please pray for these AMAZING nurses that come in to work each day not knowing if they will sit with death or stand with life. and no matter what (at least our crew of nurses) they wear compassion freely. They, each one of them, astound me.
We are all concerned about NEC - but right now Kyle only has one of the five or so symptoms that they mentioned with regard to NEC. Yes they think he may have an infection and yes it looks to be affecting or have started in his gut but they are reserving judgement for now on that.
we will know more in the morning. Kyle is back down on his oxygen requirements and has not had anymore of the de-sat episodes that he did last night. at one point today he was even at 21% oxygen (that is what we breathe!) when we left he was at 28% oxygen. the EEG is being postponed for now.
There is a little boy in Kyle's pod that is VERY sick tonight. I keep wanting to pray for a miracle and ask you to pray for that too. but I just don't know how to take all this to God. sometime I wonder what good our big fat to do list for God does. I mean he DOES have an agenda. But I believe He inclines His ear to us and scripture says that our prayers affect the heavens. but I also think that the cliche "but whatever your will is God" is usually a cop out for those that don't believe. some say to me that God doesn't purpose for kyle to be sick and hurt this is a product of our sinful world. some say that God planned this for kyle's life. Each day purposed and ordained. could both be true?
I thought 220 made me evaluate why I believed what I did and go find some pillars for my beliefs to rest on. 220 doesn't hold a candle to this. (However... I would recommend attending a 220 conference over life in the NICU!) but really I don't think there is anything wrong with questioning and searching and then hopefully building and growing.
My dear friend just lost a loved one that she says was not a christ follower. He admitted that he did not believe Jesus was the son of God. He believed in all gods. However this man was full of love and mercy. He was compassionate and giving. He fed the poor. He may have looked more like a christ follower than some of those who claim to be - the man who at age 7 walked down his church isle b/c he didn't want to go to hell and he knew he did bad things that made God sad. There has to be more to it than this. How does she now reconcile eternal separation from God for him?
I believe in God, the son of God, the cross, a resurrection and that Jesus rose from the grave as the beginning of restoration of all things back to him. but I do not understand this. I don't understand my friends loss. I don't understand why my friends don't have their precious precious little boy anymore, i don't understand why we give our career, life, children, home, church, money to God and then kyle has to endure this. I don't understand why Jadon has to miss his mommy so much.
I DON'T UNDERSTAND. and so I live by faith in the son of god who loves me and gave himself for me.
Galations 2:20 +
Please keep praying for kyle. We will update you tomorrow.
- John and Kelly
- This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.