Here is a pic of Kyle on nasal Cannula. He is so cute and even though he has been looking pretty good he tired out on the cannula today. After too many brady's and too much retracting his nurse decided Kyle needed to be back on CPAP. He was working really hard and by the end I could physically see his right side sinking in every time he took a breath. Misty could hear him grunting which is him trying too hard to create the pressure that keeps his sacks in his lungs open. The CPAP will hold this pressure for him. I am not sure if I am just disappointed, tired or really i think it just upset me to see him struggle. and it is so scary to watch his little body do things that are not normal - normal for him anyway. it is so hard to just walk away and leave him in the hands of anyone but me - his mommy. I was designed to take care of him - i mean if he had been term I would go home and "just know" what he needed. but I don't have the skill or the education or the know how or the ability to take care of my own son. i am so grateful and I am trying to rest in that instead of focusing on the fear. I just think that the instinct to take care of him and the inability to do it sometimes leaves me with fear or worry that might be a better term.
he is in the absolute best hands possible right now. he is with misty and if she says he needs CPAP then he needs it - she knows him. and she cares about him - in fact I asked her to blow him a midnight kiss.
i think I just am getting ready to bring him home - i mean i just want to - I can't wait to strap him on me with one of those hippie papooses and cart him all around the house. I can't wait to snuggle like the lady was tonight at the restaurant with her little one. i'm just ready!
please pray for kyle to get stronger and bigger. they will try him on nasal cannula again when they feel he is ready.
thank you God that kyle is antibiotic free! thank you that he does not have any ivs. thank you that he is progressing and growing. PLEASE protect him. God would you fill Matthew's mom and dad with peace - i don't know how you will do it, but please and even joy. God will you heal Coy from his infections. Thank you Lord for Misty, Amy, Valerie, Brandi, Valerie NP, Dr. Lopez, Kim, Debbie, Carrie, Kelly - would you bless this army that fights for our children.
15 comments:
Happy New Year and love to all...
Just think, your little man is in to his second year...Yea...He was born in 2007 and it is now 2008 and soon he will go home and then not long after, he will be having his first birthday...I know you are tired of the hospital and not having your little man at home...but just remember...he needs to be there to continue getting better...I know that it is not much help or comfort...but this too shall pass and then the hospital will be just conversation in passing...woo hoo...
You said it right...he is in the BEST HANDS...OUR FATHER IN HEAVEN WHO LOVES US VERY MUCH...
I look on here daily...sometimes several times a day to read what you or John has written...I am so looking forward to the day that you have the news of his going home celebration...I know that will be a happy and glorious day for all of you...
Father, I come to you right now and ask for your tender loving touch on baby Kyle and all of the other babies in the NICU...they all need you so much and you know everything that is going to go on with each of them...I thank you so much for all of the answered prayers for baby Kyle and his family...They are a precious family and they love you so much Lord...
Thank you for giving Kelly that extra special hug that only you can give her as she is longing so very much to have her little baby in her arms and to be the one that is taking care of him and his needs...Thank you for bringing Kyle to new days and to no IV's...Thank you for just loving us and continuing to keep you hand on the little LION...
In JESUS name we pray...amen
LeAnn Smith
lulibell60@yahoo.com
I am sure he will be back on nasal cannula soon! He progressed very quickly on the CPAP! He did awesome, very awesome once he was extubated! I am SO excited that Kyle is IV free! That is such a BIG step in going home! You guys will be home before you know it. Kelly, I had the same thoughts yesterday about caring for Coy; although I know he's in the best place, all I really want to do is rock him to sleep, feed him, etc. "the normal mommy things" one day soon girl! we'll both be there! Happy New Year! We'll come down today to see Kyle...
What an awesome way to start the new year... seeing Kyle without IV's or the CPAP! I am so glad I came here to check on him this morning. Kyle was born at the exact moment God had planned and he will go home with you when it's time. You dont want him to come home to early and have to go back... I know you know that Kelly...
Still praying, still believing, still expecting continued healing and growth and praising God for the progress so far!!
Candy Humber
Kelly, how much your words remind of how I felt so many times when Kirby and Colton both were in the NICU. There were times when I physically hurt ached over having to leave them each evening. Sometimes just going to the grocery was so hard because I would see other couples with their children and ache to have mine with me. However, through it all God was and is faithful and I was reminded that He had not given me a spirit of fear but of power and of love and a sound mind which meant to me that I had to take all of those thoughts of fear and envy captive over and over again.
After Kirby had her first surgery, she did not do well and had to return to at that time what was called the Turner unit to be back on the vent and major support which we had not been on for a few weeks. It was devistating. I just stood there beside her bed and cried and poured out my soul to God and basically had a pity me, pity Kirby party. I really thought I had good reason to however, at that moment the Spirit came to me and ministered to me in ways that I can not put into words even now 12 years later. It was through that experience that my faith was made even more strong and more real. It was that moment that I gave up all the tiny strings of human wisdom, strength and understanding. So hang on friend. I know you can see the light at the end of the tunnel but remember that these days are just as precious as those you will spend with Kyle at home. As I found out when Colton was born, cherish this time with Kyle. I know you do but even more this is your time with him. I know you feel bad about him being born early but as my sister in law said to me when Kirby was born, " you get three extra months with Kirby how wonderful and lucky you are". I never even thought of it that way. I was so caught up in the guilt of not doing what I thought was my calling in life to do, have a baby. I was so mixed up in my own failure (or so I thought) as a mother that I didint even see the blessing right in front of my face, 3 extra months with this blessing called my child. I dont know it all and dont claim to, but this changed my perspective and I hope it helps you too. This is a time that you will look back on as years go by and see miracles and blessings that you could not see at the time. Love you guys so much we continue to pray for Kyle and stand in healing for him.
Brandie
Wow! It is so wonderful so those big big eyes! What a cute little man!
I just wanted to wish you a happy new year from us Oneys down the street!
It is great to see more of those tubes gone from your precious son.
Keep strong!
Stefanie
John and Kelly,
It brought tears of joy to my eyes to see those pictures of Kyle... especially the third one. Those big, precious, loving eyes of Kyle's that God so beautifully created. I ache for you Kelly when you wrote how you just want to take Kyle home and be his mommy doing all the mommy things for him... taking care of him. As others have said in their comments.. Kyle is right where he needs to be. I praise God for the many nurses and doctors who spent all those many years learning how to be what they are today so they could be there for Kyle and for the two of you. Thank you God for the knowledge you have given these wonderful people so they can help Kyle become strong and healthy for the wonderful day when John and Kelly can take him home and they can have all three of their precious boys... Jadon, Jack and Kyle with them!!! God is so good!
Much love and prayers,
Tracey Hutcherson
Hey Kelly,
What is coy's blog called?
OH wow...I've been away from my PC so I missed 2 days of updates...Oh my gosh, Kyle is way beyond precious & beautiful & awesome... He is truly a MIRACLE!
And Kelly, I will be praying for all that you mentioned in this update...but I will be praying for you--you will be my focus as I (as a mother) feel your pain in loving that baby & feeling fully responsible for him & his well-being. Amazing how God made us to feel this way but HE did & HE certainly knows your pain so I am going to trust & believe HE will fill you with peace & joy & calm your anxious heart (over&over&over again). Just like Kyle needs you - you need your heavenly Daddy & only HE can comfort you. Kelly, you all will come through this & I am so thankful to be a part of your journey...even if it's from afar & through this miracle of technology=the internet! I love your family so much & I don't know why but I'm so thankful for you all & I continue to pray for you as if you were all my own. I want you to know I cry with you & rejoice with you & fall on my knees with you & ooh-&-aah over Kyle's pictures. I wake up anxious to see what Kyle is up to - some days are obviously better than others...but either way, you are on my mind all throughout my day. And then at night I check the site again for an update & then I pray for you all.
Kelly, John, you are loved. Your pain is felt all over the world. And I believe the GOD we all worship sees us & hears us & loves us & rejoices in our love for one another.
I am in this till we all see Kyle up & running 100% - I am with you how ever long it takes.
ABUNDANT BLESSINGS & MIRACLES IN 2008.....GranMammy B
Barbie Weller - Mansfield
Your little guy looks beautiful! My little guy looked the same way when he was in the NICU. We saw him wear out like your little man when first using the nasal canula as well. Keep your faith. God has your little boy in his hands. Before you know it, this will all be a small memory of his long life. I promise! We were in the NICU for 96 days and now have a 28 month old at home. It's wonderful! Praying for you.
Happy New Year...
Still praying for you, Kyle, and those at home.
Hi Kelly and John,
I just wanted to let you know that the folks at Friendship Baptist Church in Mexico, Mo asked about Kyle last night at church. Fortunately, I was there in person to share an update. It was great to hear everyone lifting Kyle's name in prayer. Thanks again for sharing for family with us.
Still praying, still believing and still expecting continued growth and healing for Kyle.
Candy Humber
another potent post....your thoughts are unbelievable....a wonder of humanity....you inspire like few I've seen..
God Bless You and family.
Dear Kyle's Family...I just wanted to write to encourage you. I don't know you and you don't know me, but we share a bond in Christ. I recieved and email from a dear friend of mine who asked me to pray for her cousin's "newest addition" and sent a link to this website. I in turn have sent it out to all my prayer warrior friends and they check on Kyle's updates as well. They have passed the message on to all their friends and so on and isn't God good? I know you know this, but there are prayers going up all the time on Kyle's behalf. We will continue to pray for his continued healing, strength, stamina and health for you, the family. Blessings!
Kelly - I am begging God to continue to strengthen Kyle, to give him easy breath, a healthy digestive system, complete neurological health, strong bones, clear little eyes and a personality the size of all of the big hearts that have been pouring their work/prayers into him each day. I am praying for you and John, Jadon and Jack as well.
Your little guy has brought so many into God's lap with petitions. I often read the blog and think of how God must watch us struggle with our lives. I think of how I probably look spiritually to God, fragile - struggling in the most basic of functions - helpless. I have thought of those God has surrounded me with, who have unwittingly - and in some cases very wittingly have 'nursed' me to health. God has revealed Himself to me in a new way through your little Kyle and through your honest, open, raw requests of Him in your blog. Thank you. You have shared more than you know. I am sure that it has been difficult for you, but know that you are helping me to know how to pray for you all.
We love you all and are praying-Colleen
He is so cute! We are so glad to see updated photos. It's amazing to watch the transformation in him physically as he's growing and gaining weight. Praise God!
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