had our EEG today - uhhhh. met with a new neonatologist that wanted to load Kyle with Phenobarbital again! this would be the third loading dose. and this Doctor talked about the injury to kyle's brain which we DON'T know if there is one. but he is saying that there probably is and he is concerned about kyle being at sub-theraputic levels of the medicine when his brain, b/c of the grade 3 inuury, is more likely to misfire (seize). But like I pointed out to him "it has been this way for a month! so if you didn't follow the neurology recomendations = it is kinda late to cover their buts. part of me worries that they are just covering them and not thinking about Kyle. but he says they are not doing. Dr. Fant (i think is how you spell his name) He was very concerned and he did the EEG at sub-theraputic levels and then loaded him again! 3 of his 4 big desats were after this! that medicine makes him sleepy so he has a harder time remembering to breathe. I asked why other docs would leave him there - he did not comment and said that is why we want to all get on the same page while he is hear and so we have a BIG meeting with neurology soon. I am dreading that - they are so negative - they don't think they are but to me they are. VERY.
anyway - no primary nurse tomorrow so I will be there bright and early to listen and comment on our thoughts!
I am asking that God you grow his lungs to where he doesn't de-sat and have to work so hard to breathe. Would you give him rest and cause him to grow. Would you heal his brain that when they do the MRI and this EEG they only see perfection that you created and have restored. I now you heal - I now that - one thing I know - I know you do this. Please.