I would like to report that as of today, March 26th Medicaid adjusted their computers to show that Kyle does in fact live at home with us and not at the hospital. It has only been 41 days since he came home. It has only been one month since we sat in the SSI office and had to change this ourselves. Again - of all the friends we met at Hermann - we are the only ones that had to go and in person change kyle's residential address from the hospital to home when he was discharged.
Now, why did we have to do this? b/c there is a clinic that gives preemies the RSV shot (to help them not get RSV) however they do not give shots to the babies that are still in the hospital. and b/c of medicaid's inability to update in a timely manor they said we could not prove kyle was discharged! ridiculous! now, we could have paid $2200 cash to have the shot and not fuss with medicaid - but everyone that I talked with, the hospital (phone calls everyday), the clinic (whose hands were tied - so they say!), SSI (49 minute wait time on the phone and 35 minutes in person), medicaid office (38 minute wait time on the phone), medicaid advocate (82 minute wait time) - they all said "it's done - i'm not sure what the problem is", "it will be done soon", "call me back tomorrow"....
I could go on for days - but then I met a lady (I can't tell you how) named Mrs. Anderson. She worked and worked and worked and even she was supprised at the run around I had been given but today - 5 minutes before Kyle's shot - she had it done!
We were going to have to shell out the money today b/c it was the last day for Kyle to safely get the shot! so 5 minutes before we were out $2000. she came through! Kyle wasn't so thrilled about the shot! but we are - it will keep him well! and to celebrate - the whole fam went to a restaurant on the way home - it was lunch at 3 pm so the place was empty - and kyle was covered the whole time - but still we were out. I can't tell you how nice it was to eat chips and hot sauce! it was fun getting a table for 5 too! that was a first for us!
and finally the big news!!!! Kyle is 9 pounds 13 ounces! WOW! I will post pics soon!
all that medicaid rambling just to say - Kyle is getting so big!