Kyle's NICU Story in Pictures

Wednesday, March 26, 2008

PMS & Medicaid - Kelly

let me just say - not a good combination, the PMS and dealing with Medicaid!  I do not know out of the 10 or so families that we got to know in the NICU and of the 1000s of families that have the benefit of Medicaid - how we got so messed up.  The hospital has it's theories - medicaid and SSI have thier theories but, who knew... neither one matches the other!

I would like to report that as of today, March 26th Medicaid adjusted their computers to show that Kyle does in fact live at home with us and not at the hospital.  It has only been 41 days since he came home.  It has only been one month since we sat in the SSI office and had to change this ourselves.  Again - of all the friends we met at Hermann - we are the only ones that had to go and in person change kyle's residential address from the hospital to home when he was discharged.

Now, why did we have to do this?  b/c there is a clinic that gives preemies the RSV shot (to help them not get RSV)  however they do not give shots to the babies that are still in the hospital.  and b/c of medicaid's inability to update in a timely manor they said we could not prove kyle was discharged!  ridiculous!  now, we could have paid $2200 cash to have the shot and not fuss with medicaid - but everyone that I talked with, the hospital (phone calls everyday), the clinic (whose hands were tied - so they say!), SSI (49 minute wait time on the phone and 35 minutes in person), medicaid office (38 minute wait time on the phone), medicaid advocate (82 minute wait time) - they all said "it's done - i'm not sure what the problem is", "it will be done soon", "call me back tomorrow"....

I could go on for days - but then I met a lady (I can't tell you how)  named Mrs. Anderson.  She worked and worked and worked and even she was supprised at the run around I had been given but today - 5 minutes before Kyle's shot - she had it done!

We were going to have to shell out the money today b/c it was the last day for Kyle to safely get the shot!  so 5 minutes before we were out $2000.  she came through!  Kyle wasn't so thrilled about the shot!  but we are - it will keep him well!  and to celebrate - the whole fam went to a restaurant on the way home - it was lunch at 3 pm so the place was empty - and kyle was covered the whole time - but still we were out.  I can't tell you how nice it was to eat chips and hot sauce!  it was fun getting a table for 5 too!  that was a first for us!

and finally the big news!!!!  Kyle is 9 pounds 13 ounces!  WOW!  I will post pics soon!

all that medicaid rambling just to say - Kyle is getting so big!

8 comments:

Anonymous said...

Party of Five!! - how fun is that?
(if you are too young to remember that show - I don't want to know about it.)
Mrs. Anderson is an angel!
:) lanay

Anonymous said...

I think it is just awesome that you were able to get his shot in time and what a blessing to get to go out with your WHOLE family!!! Joe and I are still in prayer for you every day.
Kim McDonald

Tabaitha Kaye said...

Wow, he is getting big!

Ben & Kara said...

Can you believe we are 15 months out from NICU and Truman is still listed as being in the hospital by Medicaid? Fortunately, all of his medical care is at hospital-based clinics, so they are still paying, but it causes me to have to spend lots and lots of time on the phone dealing with it on a regular basis.

By the way, that is awesome growth. Truman wasn't that big until he was about 4.25 months adjusted (8.25 actual). Grow, Kyle, grow!!

Chris&AnnMarie said...

Wow, he is so big! Can't wait to see you guys again!

Carol said...

When Jacob was 6months old he weighed 10 pounds exactly! (Random that I remember that!)

Anonymous said...

Kelly,
I am so glad to hear that Kyle is doing well and is "growing like a weed!!" I still hope to meet him someday. I pray for you ALL whenever the Lord places you on my heart. Can't wait to see the photos.

Candy Humber

Sherri said...

Hi Kelly! I'm not sure if you remember us from the NICU...Glad to hear Kyle is doing so well!!! I keep checking the site to see how you all are doing. Looks like our prayers are working! YAY! I'll keep checking back.

Matt, Sherri, Ty and Caid

Click below to go to my Personal March of Dimes Page

Our Story

This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.

Kyle is in the March of Dimes Promo!