kyle fell asleep after a doctor visit. he has a sucker in one hand and a tongue depressor in the other! He also has ankle weights on his ankles. Just a quarter pound on each ankle. This is for sensory awareness. kyle has a hard time organizing his space. it was described to me best like this - and this is really when I notice it too - he has been walking for a while now but still walks like a new walker. very little balance. tumbles over all the time. if something breaks his organization of "this is how I am walking" he doesn't compensate like he should. ie) stepping over or going around a toy, someone approaching him, a small step, etc. Also if we are at home he is organized enough (b/c we are there so often) that if he wants to go down a small step he usually thinks to hold the wall and step down one foot at a time. but if we were at therapy or out at a newer place he would not stop to think "this is a step, i should slow down and go one foot at a time." if he goes up a step he doesn't seem to notice the if he steps back he will go down a step. all of this b/c when his feet hit the ground he does not gain the same input that we do. so this is why the weights will help.
We have already noticed a difference. It is slow going - but it is a difference.
I wanted to ask for opinions out there from moms who have dealt with this. Kyle is a former 23 weeker but doing amazing. I looked up Sensory Disorder or Pedi Sensory input problems on the web but all I could find were suggestions and info for kids that have this very severe. I read over the diagnostics for SID Sensory Input Disorder and kyle only has about 4 of the 18 symptoms. So I feel like I am having a hard time finding resources. any thoughts out there? i have an amazing team of therapists for kyle. I would just like more reading information.
Kyle is a cutie - he waves bye and says bye bye, he says Hi, Up, Down, Please, Cookie, More, Mama, Daddy, Jadon, and he can bring his arm up to his mouth and make a fart noise! I am most proud of that. he also laughs at himself if he thinks he is funny!