Kyle's NICU Story in Pictures

Wednesday, October 31, 2007

Two steps forward... three steps backwards


We just had doctors rounds this morning...

Two steps forward... three steps back. This is what they keep telling us over and over, and you hear them, but you just don't want to believe that after such great things happening, you will start going back to the same stuff you dealt with before. But, never the less, here we are,... so here is what is going on.

It seems as if Kyle's PDA valve has reopened itself. They said that this could happen, and likely would. We hoped and prayed it would stay closed, but that darn little thing decided to open back up for business. The plan is to treat him once again with this certian medicine that has a good success rate, but sometimes doesn't work as well in micropreemies like Kyle. Pray, please pray that this works. Things get stable fast when it closes seemingly, so we are praying that the medicince closes it for good this time. While they administer this treatment of medicine, they must stop feedings, so the steps of progress takent there will start all over again in the next day or two, if the meds do what they are suppose to do.

There is still much worry about infection. They did a CBC this morning to check all the levels in his blood. Red blood cells, white blood cells, immature white blood cells, etc,... and so far, that looked ok. They are watching it, but it seemed that it was decent for now.

They are playing with his vent setting today to see if they can better that situation even more, but with the PDA issue, that is a fight back and forth.

His skin is still just so immature, and Kyle himself was a little immature in developement even for his gestation age, which goes against him, but, I believe that he is doing well and so do the doctors - for his age and for where he should be statistically.

Please pray for us all today. Pray specifically for Kyle's PDA valve to close, the medicine to work for good, and for his feedings to resume, and resume well.

Pray his digestion system keeps developing well,and that when they resume feedings, that it all works perfectly.

Pray for his respiration and his lungs to continue to develope and that he can get rid of fluid that has built up a little.

Pray that his kidneys continue to do well, and that all is working perfectly there.

Pray for his skin - specifically his stomach! His poor little stomach has so much breakdown from probes and stickers, etc,... pray his skin corrects itself and heals and gets stronger!

Continue to pray against brain bleeds (IVH)

and Continue to pray asking God to help Kyle to avoid NEC.

Pray against infections of any kinds... bacterial, fungal, staph, etc...

Pray against any attack of the enemy today who desires to steal, kill and destroy.
Prat that there will be no weapon formed against us that will prosper.

And,... last but not least, they are taking out Kyle's umbilical line today, which means he starts getting a lot more stuck with needles. Pray for this removal to go well, and that it would not allow any infection in. This removal gets us close to being able to hold Kyle a special way, which will be great for him and mom.

Thanks for praying. Kyle needs you today!


shauna maness said...

i love this blog! even when i am at home i feel like i am with you guys. i am praying here!

Andy Rhodes said...

Hey John and Kelly,

It was great being able to see you guys the other day when my dad was having surgery. This blog is a great blog and I'm glad you all are keeping us informed.

I wish I could offer advice or had words of comfort, but I don't. Just know that I'm praying for you all, and Kyle. Here's a song I heard the other night that might encourage you. I know there's not much quiet time you get, but I hope this song provides something for you:

The more I seek You
The more I find You
The more I find You
The more I love You

I wanna sit at Your feet
Drink from the cup in Your hand
Lay back against You and breathe
Feel Your heartbeat
This love is so deep
it’s more than I can stand
I melt in Your peace
It’s overwhelming.

Beverly Fox said...

Thank you John and Kelly for sharing so much of your heart with us. It helps us feel a small part of your hurts right now and hoping it gives you some relief from the pain. My heart aches for you, knowing full well that God is greater than anything in this world and knows your hurts. I am certainly praying for Kyle's tiny little body to heal, eat, and grow strong in the nurture and admonition of the Lord. We all are Praising God for His mercy and grace. I can hardly wait to see that liitle guy come in running showing off new shoes or a new ball. Praise God from Whom All blessings flow. We love you deeply and are praying fervently. I also am praying for you to have a restful sleep tonight, knowing that God is watching over Kyle. Our joy comes in the morning and pray that tomorrow brings miracles that only God can give. Blessings to you both, Beverly Fox

Tabaitha, Adam, & Mason said...

I came across your story and the blog just yesterday and my heart goes out to your family. Once I started reading, I couldn't stop. I too just had a little boy and can only imagine the emotions and truth you write of. I will be praying for all of you. Kyle doesn't have any imperfections in God's eyes. God knows what each day holds and is in control. Trust that he is taking care of Kyle.

"Fear not, for I am with you; be not dismayed, for I am your God. I will strengthen you, yes, I will help you, I will uphold you with My righteous right hand." Isaiah 41:10

Click below to go to my Personal March of Dimes Page

Our Story

This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.

Kyle is in the March of Dimes Promo!