Kyle's NICU Story in Pictures

Sunday, October 18, 2009

Kyle... a sensory kid?

You know on one hand your logic tells you that 23 weekers are not born and survive and flourish without some little problem somewhere - as if they didn't have enough in the beginning but some lasting something - medically speaking - I guess. Then your faith in your heavenly father tells you that He heals. and i REALLY TURLY know that he does. I also really do know that wow - my father's definition of love and healing is so above mine. I cannot even come close to understanding it - only accepting and trusting in it. Then there is human love that drives us to not want to believe anything could be wrong with such a sweet child that we love. Then of all the people that know and love kyle and work with him - we all have our different life experiences that lead us down different roads and give us our own opinions on each of these above ideas.

So.... as mom and dad to a kiddo that may or may not have special needs... we get to decide which way to lean. which way to go. medical treatment or no. therapy for "that" or not. does he just like ice or is he sensory seeking. did he play in his poop during sleep b/c he is sensory seeking or b/c he is almost 2. Is he staring b/c he is having seizures or does he stare into space for the same reason i stare off into space every now and then. and I'm sure anyone reading this has an opinion on each of these too.

All i'm typing really is my thoughts on details of parenting - well my parenting really. and I know this happens everywhere - mom's that think all kids need a paci. mom's that think no kid needs a paci. all the lovely opinions we hear on private vs public vs home schooling. For some reason i seem to be more sensitive to all the opinions about kyle. I don't actually care what anyone things of my decisions; I think i just am feeling the weight of the result of my decision.

I am thankful that God gave kyle to me and I get to do what I feel like is best for him. Kyle's birth has changed our lives so much more than i even expected but in such a different way than i expected.

So Kyle is starting to show signs that I think might be some real sensory seeking. I am not sure what this means or what the next steps are to take.

He is adorable and doing so well in his learning. He loves mothers day out and is really learning there. He is also about to be 2 and it mostly shows in his temper or distaste for not getting is way!

We have an EEG coming up and meeting with his Neurologist soon after. I'll try to do better about keeping posted.

Click below to go to my Personal March of Dimes Page

Our Story

This story begins with 5 people. John, Kelly, Jadon, Jack, and Kyle (he is only 23 weeks old... and he is still safely tucked away in his mommy's belly) In an hour's time Kyle made his way into the world. 1 pound, 3 ounces- 11 and a half inches long. This family will never be the same. This child is a warrior. He has the spirit of a Lion, and more courage than a whole pride. He is fierce, and fearless- and he is teaching us to fear the Lord- and to believe that God is in our midst and healing even now. Join us as pray, as we praise, and as we journey through this life as lovers of God and all His glory.

Kyle is in the March of Dimes Promo!