Quick post - A very cool and very important :) person at Hermann emailed to check on kyle today since his surgery and I was updating him on kyle. This has been such an exciting week - and really needed - last week I was feeling really discouraged about kyle's developmental progress - you know it seems like he waits until he has us all in an uproar and then he just lets out with these huge leaps and bounds in growth! here is a piece of my email.
Kyle is very heavy in therapy right now so it feels like we are working very hard. But - you need to walk up to the NICU today and give a hug to everyone in there that fought so hard for kyle (I am getting to the why!!!!) do you remember those days in November when it was so grim - kyle's brain bleed had gotten worse.... all the way to a grade 3 IVH. But no one gave up - even when I felt like I had to as a mom - no one gave up.
Kyle started saying words this week! WORDS - and he is only 13 months corrected. He says "cookie". I think most 23 weekers that survive have severe feeding issues and Kyle, a CMHH NICU grad! :) , says "COOKIE" .... sounds more like "too - ckie" and he also started saying "outside" today. One of our (doctors and therapists) biggest fears for kyle due to his brain injury has been motor planning. being able to carry out a desired action the way he needs too. Today we had all the neighbor hood kids over in the back yard (yes we are still in isolation!) with Kyle's big brother's and when he heard them out there playing - he crawled over to the door and pulled himself up and stood on his tip toes to get his fingertips on the door knob and I said - "do you want to go outside" and he looked back at me and said "out - side" sounded more like "OU - SIGH" ADORABLE and AMAZING!
I really am amazed.
oh - and this is a pic of jack when I asked him to help me put away the groceries..... these are the straws!