Saturday Day 13
So, we actually left the hospital early tonight. It was hard to do, but we are exhausted. We are home, trying to sleep, but that doesn’t work either.
We come home, and read emails and encouraging notes, and think, and pray, etc… there have been so many people come into our world over the last week and a half,… neonatal experts, families that have been through this, etc…
So, there is much reading and writing going on back and forth.
Kyle had a decent day today. He rested, which is good.
We knew there would probably be no big news today, so, it was a good day for all of us to rest and take a small breather.
They did take out Kyle’s umbilical line today, which is good and bad.
Good because that can cause infection if left in too long,… bad because
Now… to get blood, they have to prick his heel. Our primary nurse told us that
Some babies as they grow can’t stand their feet to be touched b/c of this.
So, Kyle will be like his dad in that regard… he won’t like feet, and probably he will hate roaches too, because, well, I hate roaches. : )
That is one creation I want to ask God about for sure…
Kelly read to Kyle today. That was great for her and Kyle. His nurse said he loved it… he began to over saturate, which means they need to turn down the vent cause he is doing well at that moment. Evidently, Kyle likes the sound of his mom’s voice.
We are still asking you to pray for Kyle in the same ways.
1. Protection for his brain… pray asking God to recede the blood and for Kyle to absorb it back into his system. Also, pray for protection from future brain bleeding.
2. Pray for continued quick development for Kyle’s lungs, brain, skin, kidneys, -- all organs…!
3. Pray for Kyle to grow and be able to accept his feedings!
4. Pray for Kelly and the boys. We need to find some sort of new “normal” for life with our newest in NICU downtown.
5. Pray for a strong immune system to grow for Kyle!
May God be glorified in and through all of this ---
We are truly thankful to God for our boys,... all three of them!
He has given us these little dudes to help them see His purpose
for their lives! What an amazing yet humbling reality.
Kyle's NICU Story in Pictures
8 comments:
Praying for rest!
We are praying for you all! We love you!
P.S. - Your post made me think of 'Subway Lady..." :)
Casey, Steph, and Braelyn Cease
Praise God for a good day.. Father, Thank you for all you are doing for little Kyle. I feel the need to say that sometimes we can all be so busy with our lives and asking you for things, till I just want to take a step back and say "Thank You" for everything that you have already done for him and pulled him thru.
Thank you for being with John and Kelly and their Jadon and Jack during this time. Thank you for the love that comes from knowing you, that is being expressed to this precious family. Thank you for the wisdom of the doctors and nurses. Thank you for the time that Kelly was able to enjoy today reading to their little man, and expecially for the response he gave back to her...That is such a blessing to hear about. I know he knows you are taking care of him and helping him to grow stronger and healing every part of his tiny little body...And I just want to say "Thank You" for loving all of us so much that you gave us the ultimate gift of YOUR SON, JESUS CHIRST...it is HIS name that I pray and give thanksgiving...
AMEN
Love to all,
LeAnn Smith
We love your family so much. I am sorry that I have not been in contact since Kyle was born. We've been out of town since he was born. What a fighter. You'll have been on our minds constantly. Thank you for allowing us and others to share in this journey with you. I know how exhausting it must be to deal with everything and then find a way to put it in writing. You are doing a great job and every little bit helps us, those that love you, catch a glimpse of what God is doing. I don't understand God's purposes in all of this, but I thank the Lord that little Kyle is a fighter. We want to come see you this week, but only if it wouldn't disrupt the little semblance of routine you are trying to establish with your family. If it would disrupt your routine too much or take time away from the already limited time you have with the boys then we'll stay in Bryan and send our love another way. Just know that we want to be there and love you guys dearly.
staci
The world-wide-web is a most amazing place...I venture to a church member's web page... find a prayer need for a premature baby...I have a heart for premature babies...I read up on sweet little Kyle...I wonder why am I feeling the need to write to people I don't even know?...so I take it as God's leading...
Sherrill family, I wish you God's peace & encouragement. I will be praying for Kyle and peeking back at this site for updates. I am an RN in Austin that holds little hands and feet just like Kyle's. I have been doing it for almost 13 years. My experience tells me that so many of these little ones go home to bless their families. Your blog demonstrates that you are already allowing Kyle to bless you now. Get some rest, get some rest, get some rest. Take every offer of help anyone extends to you...growing up a 23 weeker is a long haul in the best of circumstances!
I will keep your doctors and nurses in my prayers, too, and -who knows- Kyle may have nurses praying over him as they change diapers and flush IV lines and suction ET tubes, just like I do for "my" little NICU patients.
I hope that encourages you,
Have a blessed day,
Wyana (mom to Nate, Luke & Jamison...welcome to the 3-boys-club!)
Continued prayer for all of you. Even Cooper our 2 year old asks about baby kyle. Kirby our 26 week premie who was also at HCH NICU said she will be glad to give you any information on how it feels to be a survivior. She is praying for kyle and sending out updates to her pray and small group at church. She said to tell you that you are right about the foot thing. Even to this day 12 years later she still does not like to have her feet touched ! No big words of wisdom, just hope and peace. Hang in there the fight has only begun. I know that both you and Kelly will find the balance soon of home and hospital and will find a routine that works for both of you. We finally did and that seemed to help as well with my mental status. Being able to get all things done that you need to do and still having time to do the things you want to do without guilt or feeling like you are being torn in two directions. When Kirby was at HCH they had a support group that met during evening shift change once a week. If they still have it I would so encourage you and Kelly to go. It was a life line for us. We enjoyed visiting with other families and just being together with folks who knew and understood what we were going through. In the mean time if you need anything call me or e-mail bmart@satx.rr.com. I know mom has talked to your mom several times on the phone and that has been good for both of them. They were here this weekend and the first thing mmom did when they got here on Friday was run to the computer to read the latest on Kyle!!! Wendie has been in the loop as well and she has been asking about Kyle too. It is amazing how people come out of the woodwork when you have a blessing like this. I remember driving through the drive through at the bank and having the teller tell me she and the ladies at the bank were praying for Kirby. I didnt even know she knew who we were !! Amazing. Anyway, love you lots.
Brandie
i'm praying for you guys today.
ALMIGHTY God, and merciful Father, thou who alone canst heal; Behold, we humbly beseech thee, with the eyes of thy mercy, Kyle, for whom our prayers are desired. If it be thy good pleasure, deliver him, O Lord, from his bodily pain, and prolong his days here on earth; that he may live to thee, and be an instrument of thy glory. Grant this, O heavenly Father, for the love of thy Son, our Saviour Jesus Christ. Amen.
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